Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®. What began as a grassroots movement in 2009, with just a few rare disease parent advocates and foundations, has since grown to over 500 global organizations.
Their mission is to eliminate the challenges of rare disease. They build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.
On February 28th they will host their first ever Denim & Diamonds Fashion show at The Resort at Pelican Hill in Newport Coast, California. Models will be walking the runway in honor of their loved ones that have been effected by rare diseases.
More info on Global Genes can be found here.