Global Genes is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope, the Blue Denim Genes Ribbon.
They are gearing up for the 2017 RARE Patient Advocacy Summit, which will be happening September 14-15 at Hotel Irvine in Irvine, California. This event brings rare advocates from across the globe together to Connect, Collaborate, and Activate.
Also happening is their annual Tribute to Champions of Hope event on September 16th at Grove of Anaheim. The purpose of the Tribute to Champions of Hope is to recognize those who are uniquely attacking the challenges they face in the fight against rare disease.
For more info on Global Genes and their upcoming event visit their website here.
Listen to Kari Steele's interview with Nicole Boice, CEO & Founder of Global Genes below: